The ‘Otherness’ We Experience as a Family With Kids Who Have a Rare Disease

Lani discusses feeling like her family is treated like the “other” and the exception during the pandemic because her kids have a rare disease.

Published first here: https://themighty.com/2022/01/feeling-othered-prnt-child-rare-disease/



Original post here: The ‘Otherness’ We Experience as a Family With Kids Who Have a Rare Disease

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